Every year, on the third Saturday in September, I write something for Usher Syndrome Awareness Day. I've been doing this for a long time. And I've told a lot of versions of our story. I've written about diagnosis. Grief. Hope. Research. Advocacy. Finding purpose in something I never would have chosen. I've written about my sons and all the ways they have amazed me. Two years ago, I wrote about reframing my outlook. I wrote that I was trying to move from asking, “Why is this h