It’s taken me a few weeks to find the words. Honestly, I’ve been grieving—grieving the loss of expertise, of stability, and of the systems that families like mine have spent decades helping to build. Today, I spoke at a national press conference to share what’s at stake for families like mine. I wasn’t there as a special educator or policy expert—I was there as a mom. A mom of four children, two who are deafblind. What follows is the statement I shared. It’s deeply personal,